Privacy Policy

The information and services provided by the Choroideremia Research Foundation are for informational purposes only. The information and services are not intended to be substitutes for professional medical advice, diagnosis or treatment. If you have or suspect that you have a medical problem, promptly contact a physician or other qualified healthcare provider. The Choroideremia Research Foundation does not recommend nor endorse any specific physicians, products or treatments even though they may be mentioned on this site. In addition, please note that any personal information you provide to the Choroideremia Research Foundation during telephone, email, website, or social media conversations may be stored in a secure database to assist the Choroideremia Research Foundation in providing you with the best service possible. Portions of the constituent data stored in this database may be used to inform future programs and services of the Choroideremia Research Foundation and may be provided in aggregate form to third parties to guide future choroideremia research and treatment efforts. The Choroideremia Research Foundation will not provide personal identifying information (such as your name or contact information) to third parties without your advanced written consent.

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