Get Involved
If you are a competitive athlete, a weekend warrior, or just want to make your way across the finish line of your first 5k – joining Team CHM is a perfect way to raise money to end blindness caused by CHM while taking on a personal athletic challenge. You can be a part of Team CHM where ever you live, in any athletic event you choose.
Questions? Just send us an email We can help you identify local events to participate in, register (discount codes may be available), and help you set up a personal fundraising page. Or, if you are ready to start fundraising, you can Join Team CHM Now
Host a Fundraiser
Starting your own online fundraising page offers you a quick and simple way to rally your friends and family to support the mission of the Choroideremia Research Foundation. Past fundraisers have held bake sales, trivia nights, Dining in the Dark, banquets with silent auctions, and virtual events!
Creating an online fundraising page is now easier than ever!
Want more tips on running an event? View our Fundraising Toolkit
CRF Membership
The Choroideremia Research Foundation is a member-based organization – Membership is FREE, and open to any interested person. Membership is by household and covers all adult (18+) members of your household
Please join us today – we will keep you informed of recent updates in research and other news related to CHM. Information shared with us is confidential.
Join the CHM Registry
Join the CHM Patient Registry by clicking on your preferred language to register:
English, French, German, Portuguese, or Spanish
What is the CHM Registry
The Registry is a collection of names and some basic contact information of all the men and women around the world who have CHM.
Why Should I Join?
• Clinical trial and study opportunities will start with this list of names.
• Enable the collection and sharing of information from a large number of patients, with the research community
• Connects scientists studying CHM with people in The Registry.
• Amplifies your voice. Opportunity to participate in “Patient Preference and Experience” surveys to come in the future.
• Improves chances of drug development.
How Long will Sign-up Take?
Less than 5 minutes!
Will My Information be Shared?
All of the information provided will be treated as confidential and that under no circumstance will personal information will be shared with any other source, or third party.
Volunteer Opportunities
Thank you for your interest in volunteering with the Choroideremia Research Foundation. We have a variety of different opportunities available at different times of the year. Nearly all positions may be completed from your home, in your community, anywhere in the world!
C.A.R.S. Program
Volunteers in the C.A.R.S. (Contact A Retinal Specialist) Program make personal visits and distribute literature to local medical professionals to increase awareness of CHM. Contact Cory MacDonald by email or at 800-210-0233 ext. 1 for more information.
Fundraiser
Fundraisers organize activities to raise money either online or in local communities. Event coordinators will help to distribute educational material and raise awareness of CRF’s work, goals and financial needs. Contact Kathi Wagner by email or at 800-210-0233 ext. 5 for more information.
Leadership Committees
Several different committees, comprised of both board members and non-board members, work to support the strategic plan and mission of CRF. A variety of skill sets are needed in Committees seeking new members include:
- Publications and Communications – marketing, graphic design, video production and social media
- Audit/Finance – budgeting, investments, nonprofit accounting
- Conference – project management, organizational skills, decorating, administrative
- Patient Engagement – advocacy, social work, nursing, accessibility, accommodations
- Fundraising – sales, good phone and email skills, and a sparkling personality!
Contact Kathi Wagner by email or at 800-210-0233 ext. 5 for more information.
Data Entry
Add and update contact information for researchers, doctors and members in CRF’s CRM database. Experience with word processing, spreadsheets helpful. Comfortable with technology, solid typing and internet searching skills required. Training provided. Contact Kathi Wagner by email or at 800-210-0233 ext. 5 for more information.
Conference Assistance
Every two years, CRF hosts a multi-day conference at different locations in the US for 300+ CHMers, their families and medical professionals. Volunteers are needed on site to serve as room chairs, sighted guides, stuffing welcome bags, and a variety of other tasks including set-up and break-down. Interested volunteers should contact Beth Foss by email or at 800-210-0211 ext. 3 for more information.
Upcoming Events
The search for a cure to CHM is not possible without our generous supporters.