Be Part of Our Community
Run, Walk or Bike!
If you are a competitive athlete, a weekend warrior, or just want to make your way across the finish line of your first 5k – joining Team CHM is a perfect way to raise money to end vision loss caused by CHM. You can be a part of Team CHM where ever you live, in any athletic event you choose.
Questions? Just send us an email We can help you identify local events to participate in, register (discount codes may be available), and help you set up a personal fundraising page. Everyone who conducts a fundraiser for CRF receives a complimentary Team CHM t-shirt! Or, if you are ready to start fundraising, you can Join Team CHM Now.
Host a Fundraiser
Starting your own online fundraising page offers you a quick and simple way to rally your friends and family to support the mission of the Choroideremia Research Foundation. Past fundraisers have held bake sales, trivia nights, Dining in the Dark, banquets with silent auctions, and virtual events!
Creating an online fundraising page is now easier than ever!
Want more tips on running an event? View our Fundraising Toolkit
The Choroideremia Research Foundation is a member-based organization. Membership is open to any interested person. Membership is by household and covers all adult (18+) members of your household.
Please join us today – we will keep you informed of recent updates in research and other news related to CHM. Information shared with us is confidential.
CRF Membership Levels
FREE Membership (requires annual renewal): Benefits include: membership voting privileges; annual conference call; and quarterly newsletter with weekly e-newsletters and annual report (mail or email option). Become a FREE Member by clicking here.
Standard Membership (requires annual renewal): membership is $60 annually and benefits include: membership voting privileges; annual conference call; quarterly newsletter with weekly e-newsletters and annual report (mail or email option); recognition on CRF’s website, social media and annual report; and 25% off merchandise and conference. Become a Standard Member by clicking here.
Standard Membership (automatic renewal): membership is $5 a month and membership automatically renews on a month-to-month basis. Benefits include: membership voting privileges; annual conference call; quarterly newsletter with weekly e-newsletters and annual report (mail or email option); recognition on CRF’s website, social media and annual report; and 25% off merchandise and conference. Become a Recurring Standard Member by clicking here.
Lifetime Membership*: membership is a one-time cost of $600. Benefits include: membership voting privileges; annual conference call; quarterly newsletter with weekly e-newsletters and annual report (mail or email option); recognition on CRF’s website, social media and annual report; 25% off merchandise and conference; annual personal letter or call from key staff or board member; invitation to networking events** at regional meetings and conferences including CRF Board, CRF Scientific Advisory Board, and researchers meetings. Become a Lifetime Member by clicking here.
* Existing Lifetime Members will receive the new benefits of that level & require no further action.
** Individuals may also qualify to attend networking events by serving as a volunteer with, or fundraiser for, CRF.
Thank you for your interest in volunteering with the Choroideremia Research Foundation.
Volunteers in the Contact A Retinal Specialist (C.A.R.S.) program make personal visits and distribute literature to local medical professionals to increase awareness of CHM. Contact Cory MacDonald by email or at 800-210-0233 ext. 1.
Fundraisers organize activities to raise money either online or in local communities. Event coordinators will also help distribute educational material and raise awareness of CRF’s work, goals and financial needs. Contact Kathi Wagner by email or at 800-210-0233 ext. 5.
Several different committees, comprised of both board members and non-board members, work to support the strategic plan and mission of CRF. Skills sought include:
- Publications and Communications – marketing, graphic design, video production and social media
- Audit/Finance – budgeting, investments, nonprofit accounting
- Conference – project management, organizational skills, decorating, administrative
- Patient Engagement – advocacy, social work, nursing, accessibility, accommodations
- Fundraising – sales, good phone and email skills, and a sparkling personality!
- Research – experience in healthcare, data analytics, and science
Contact Kathi Wagner by email or at 800-210-0233 ext. 5.
Add and update contact information for researchers, doctors and members in CRF’s customer relationship management (CRM) database. Solid typing and internet searching skills required. Experience with word processing and spreadsheets helpful. Training provided. Contact Kathi Wagner by email or at 800-210-0233 ext. 5.
CRF regularly hosts conferences and regional meetings throughout the US and internationally. Volunteers are needed on site to guide patients, stuff welcome bags, set-up, break-down and a variety of other tasks. Interested volunteers should contact Beth Foss by email or at 800-210-0211 ext. 3.
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Upcoming CRF Events
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Choroideremia Research Foundation raise funds for disease
June 17, 2022, 06:12 AM EDT — FAIRPORT, N.Y. (WROC) — Officials with the Choroideremia Research Foundation announced their annual international conference at the Woodcliff Hotel & Spa will continue into Friday. The purpose of [...]
CRF award to Dr. Sena Gocuk to research female carriers of CHM
June 13, 2022, 11:00 GMT — Sena Gocuk, MSci, D-OPTOM, MPhil. studies the first longitudinal assessment of progression rates in phenotype categories. We are very excited to support Ms. Gocuk’s work to expand [...]
CRF announces research award to Dr. Vasiliki Kalatzis, researching critical CHM-related protein
June 06, 2022, 11:00 GMT — Dr. Vasiliki Kalatzis with Institute for Neurosciences in Montpellier, France. She focuses on the dysregulation of ion channels linked to RPE. Dr. Kalatzis’ research will deepen our knowledge [...]
CRF award supports new research for CHM applying antisense oligonucleotide (AON) therapy
May 23, 2022, 11:00 GMT - Ian MacDonald, MD, CM Dr. Ian MacDonald applies AON theory to stop aberrant splicing in CHM gene mutations. Dr. MacDonald’s research is a promising new path to [...]
CHOROIDEREMIA RESEARCH FOUNDATION SUPPORTS NEW RESEARCH PATH
April 27, 2022, 10:00 GMT — Dr. Gamm's proposal investigates other approaches for treating CHM, exploring new research paths that expand the scientific landscape. — Neal Bench, CRF board president SPRINGFIELD, MA, UNITED STATES, April [...]
CHOROIDEREMIA CONFERENCE RETURNS WITH STRENGTHENED COMMITMENT TO END CHM
April 01, 2022, 10:00 GMT — Choroideremia Research Foundation celebrates 22 of research progress and unwavering commitment to find a cure for a retinal disease that causes blindness With 22 years of growth and advancement, [...]