CRF Membership Levels

FREE Membership (requires annual renewal): Benefits include: membership voting privileges; annual conference call; and quarterly newsletter with weekly e-newsletters and annual report (mail or email option). Become a FREE Member by clicking here.

Standard Membership (requires annual renewal): membership is $60 annually and benefits include: membership voting privileges; annual conference call; quarterly newsletter with weekly e-newsletters and annual report (mail or email option); recognition on CRF’s website, social media and annual report; and 25% off merchandise and conference. Become a Standard Member by clicking here.

Standard Membership (automatic renewal): membership is $5 a month and membership automatically renews on a month-to-month basis. Benefits include: membership voting privileges; annual conference call; quarterly newsletter with weekly e-newsletters and annual report (mail or email option); recognition on CRF’s website, social media and annual report; and 25% off merchandise and conference. Become a Recurring Standard Member by clicking here.

Lifetime Membership*: membership is a one-time cost of $600. Benefits include: membership voting privileges; annual conference call; quarterly newsletter with weekly e-newsletters and annual report (mail or email option); recognition on CRF’s website, social media and annual report; 25% off merchandise and conference; annual personal letter or call from key staff or board member; invitation to networking events** at regional meetings and conferences including CRF Board, CRF Scientific Advisory Board, and researchers meetings. Become a Lifetime Member by clicking here.

* Existing Lifetime Members will receive the new benefits of that level & require no further action.
** Individuals may also qualify to attend networking events by serving as a volunteer with, or fundraiser for, CRF.

Volunteer Opportunities

Thank you for your interest in volunteering with the Choroideremia Research Foundation.

C.A.R.S. Program

Volunteers in the Contact A Retinal Specialist (C.A.R.S.) program make personal visits and distribute literature to local medical professionals to increase awareness of CHM. Contact Cory MacDonald by email or at 800-210-0233 ext. 1.

Fundraiser

Fundraisers organize activities to raise money either online or in local communities. Event coordinators will also help distribute educational material and raise awareness of CRF’s work, goals and financial needs. Contact Kathi Wagner by email or at 800-210-0233 ext. 5.

Leadership Committees

Several different committees, comprised of both board members and non-board members, work to support the strategic plan and mission of CRF. Skills sought include:

• Publications and Communications – marketing, graphic design, video production and social media
• Audit/Finance – budgeting, investments, nonprofit accounting
• Conference – project management, organizational skills, decorating, administrative
• Patient Engagement – advocacy, social work, nursing, accessibility, accommodations
• Fundraising – sales, good phone and email skills, and a sparkling personality!
• Research –  experience in healthcare, data analytics, and science

Contact Kathi Wagner by email or at 800-210-0233 ext. 5.

Data Entry

Add and update contact information for researchers, doctors and members in CRF’s customer relationship management (CRM) database. Solid typing and internet searching skills required. Experience with word processing and spreadsheets helpful. Training provided. Contact Kathi Wagner by email or at 800-210-0233 ext. 5.

Conference Assistance

CRF regularly hosts conferences and regional meetings throughout the US and internationally. Volunteers are needed on site to guide patients, stuff welcome bags, set-up, break-down and a variety of other tasks. Interested volunteers should contact Beth Foss by email or at 800-210-0211 ext. 3.